I don’t think I should go into too much detail for fear of sounding like I’m bragging or gloating, but I’m very pleased to say that I took receipt of my new powerchair this morning. My old one was fast wearing out and fast needed replacing. As I think I’ve said here before, while I might not need my powerchairs in the quite same way that my friends at school did – ie they aren’t absolutely essential for my day-to-day living – I would nonetheless be pretty screwed without one. They are more or less essential for my life here in London.
I think it was going to a special school which taught me every disabled person is different, and that we all have slightly different requirements. My classmates all needed their chairs for different things: about half of them used powerchairs, the other half manual. They often switched over the years as their conditions worsened. Either way, their chairs were part of who my friends were; it was just how they got around.
Coincidentally enough, a little earlier I came across a short Youtube video by a fairly young woman seeking to explain who should use powerchairs and who should use manual ones. To be honest as soon as I began to watch it, it struck me as a perverse, sickening insult, but I would just like to explain why. It was frankly obvious that the woman was one of the growing numbers of people who have only recently started identifying as disabled: it was clear she had never been to a special school, and had probably met very few other disabled people. However, she had somehow taken it upon herself to be the arbiter of who should use what type of chair, or to advise people on which chair they should be using like some sort of self-appointed expert. To be honest I found it sickeningly arrogant, as if she had hijacked part of my identity which she knew nothing about in order to attract Youtube views. She seemed to be treating wheelchairs as mere accessories which people can choose between, like they choose between shoes or bikes. Anyone with an actual disability will know what kind of chair they need and what they can best use. We don’t need some airheaded Youtuber giving us advise like some self-appointed expert, reducing something as essential as mobility to the level of any other bit of tech or fashion accessory.
Again, I know I shouldn’t get so wound up about things like this, but I hope it’s clear why it is so insulting. It’s as though these people are trying to make videos about things they know nothing about, arrogantly assuming they are experts, spouting all kinds of nonsense on the internet while drowning out those of us with actual experience of such things. It’s as if part of who I am is being hijacked, or people are thinking they can speak for guys like me, reducing my life experience to a mere internet gimmick, even though they know nothing of what our lives our like. It is really starting to make my blood boil.
Now if you’ll excuse me, I have a new powerchair to try out.


